My Daughter Had Terminal Brain Cancer, I Couldn’t Tell Her She Was Dying
Summary
A mother describes her daughter Alessia’s sudden illness with headaches and vomiting that led to a hospital visit. Alessia was diagnosed with a rare and aggressive brain cancer called Diffuse Midline Glioma, which is terminal and difficult to treat.Key Facts
- Alessia showed symptoms like vomiting and severe headaches after her seventh birthday.
- Initial doctors thought her symptoms were due to a virus since she was young.
- The mother, a nurse, insisted on specialist care and got Alessia seen by a pediatric neurologist.
- Alessia suddenly worsened and was taken to the hospital where scans showed a brain tumor.
- Emergency brain surgery was performed to relieve pressure in her head.
- The tumor was located deep in the brain and partially removed but a full biopsy was risky.
- Alessia was diagnosed with Diffuse Midline Glioma, a grade four glioma known to be terminal.
- The diagnosis means the cancer is very aggressive and hard to treat, and no cure is currently available.
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