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Hundreds contact BBC about mystery skin condition 'hell' - but doctors can't agree it exists

Hundreds contact BBC about mystery skin condition 'hell' - but doctors can't agree it exists

Summary

The article discusses a condition called topical steroid withdrawal (TSW) that some patients say they experience after using steroid creams for eczema. There is disagreement among doctors about whether TSW is a separate condition from eczema. This disagreement has caused confusion and mistrust between patients and healthcare professionals.

Key Facts

  • Topical steroid withdrawal (TSW) is a condition reported by some people after long-term use of steroid creams for eczema.
  • The UK's medicine watchdog, the MHRA, recognizes TSW as a reaction to steroid creams but not as an official diagnosis.
  • Many patients feel that steroid creams make their skin condition worse, not better.
  • Communication problems exist between doctors and patients about the understanding and treatment of TSW.
  • Steroid creams have been used to treat eczema since the 1950s.
  • Some doctors and healthcare workers are unsure about TSW due to their medical training primarily focusing on eczema as a condition improved by steroid creams.
  • The article highlights personal stories of patients who chose not to use steroid creams due to their experiences with TSW.

Source Information