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Private health records of half a million Britons offered for sale on Chinese website

Private health records of half a million Britons offered for sale on Chinese website

Summary

The UK government confirmed that health data from 500,000 volunteers in the UK Biobank project was offered for sale on Alibaba, a Chinese website. The data was de-identified, removed from the site before any sales happened, and access to the data has been paused to improve security.

Key Facts

  • The health records belonged to half a million UK Biobank volunteers.
  • The data was found on three listings on Alibaba's Chinese e-commerce platform.
  • The records did not include names, addresses, or exact birth dates (de-identified).
  • UK Biobank holds various health information, including genome sequences and brain scans.
  • Scientists and companies worldwide had direct access to download the data until late 2024.
  • The UK government worked with Chinese authorities and Alibaba to remove the listings quickly.
  • Access was revoked from the institutions that downloaded the data, but they were accredited and authorized users.
  • UK Biobank has paused data access and is upgrading security measures to prevent future breaches.
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