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'My husband finally got full-time care – he died a week later'

'My husband finally got full-time care – he died a week later'

Summary

Kirsty Parsons cared for her husband Jim, who had Parkinson’s disease, for 11 years as his condition worsened. Despite her repeated requests, full-time social care support arrived only a week before Jim’s death in December 2025, highlighting delays and challenges in accessing adult social care in England.

Key Facts

  • Jim Parsons was diagnosed with Parkinson’s disease at age 44.
  • Parkinson’s is a progressive brain illness with no cure.
  • Kirsty became Jim’s unpaid full-time carer and gave up her paid job.
  • Jim’s health deteriorated over 11 years, requiring increasing levels of care.
  • Jim received full-time paid care only in December 2025, a week before his death.
  • In 2024-25, adult social care made up about 40% of local council net service spending in England.
  • About 372,000 adults in England waited for social care as of March 2025.
  • Kirsty experienced long waits (5-6 months) each time she applied for more social care support.
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