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I became my sister's carer at six - she amazes me every day

I became my sister's carer at six - she amazes me every day

Summary

Sarah Lilly became a carer for her sister Vicky, who has cerebral palsy, from a very young age. Over the years, the family faced many challenges with care, support, and health issues, but Vicky has achieved milestones like winning dance medals and living as independently as possible.

Key Facts

  • Vicky Lilly was born with quadriplegic and athetoid cerebral palsy, affecting all four limbs.
  • Sarah, her older sister by four years, helped care for Vicky from age six and worked at the same day center Vicky attends.
  • The family had to deal with inconsistent caregiving, limited funding, and difficult transitions from child to adult care services.
  • Vicky uses communication aids and body language to express herself due to speech difficulties.
  • As Vicky aged, she experienced increased physical stiffness, fatigue, and other health problems.
  • Vicky moved to an assisted living facility but became isolated during COVID-19 lockdowns and was sexually assaulted there.
  • The family reported this assault to the police and have shared her story with consent.
  • Despite challenges, Vicky is described as an independent woman capable of making her own decisions with support.
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