I Was an Oncologist. When I Got Sick, I Did What Doctors Warn Patients Never to Do
Summary
A doctor with a complex connective tissue disorder struggled to get coordinated care from multiple specialists. To better understand her condition, she used artificial intelligence (AI) tools like ChatGPT to help analyze her symptoms and medical history as a whole, instead of isolated parts.Key Facts
- The author is an oncologist who has hypermobile Ehlers-Danlos syndrome, a disorder affecting multiple body systems.
- Coordinating care requires many specialists, but doctors usually focus on one organ or symptom at a time.
- Medical appointments are short, and doctors are often booked months ahead, making comprehensive care difficult.
- The author spends $70,000 a year out of pocket to manage her care and tries therapies not covered by insurance.
- Many physicians do not fully understand or treat Ehlers-Danlos syndrome, leading to frustration and unmet needs.
- The author used AI technology like ChatGPT to get a more integrated look at her condition and generate new ideas for diagnosis.
- She recognizes AI has risks and should not replace doctors, but found it helpful as an additional resource.
- AI can consider the whole body and symptoms together, unlike most human specialists who focus narrowly.
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