Jesy Nelson 'outraged' after MPs debate muscle condition that affects her twins
Summary
Singer Jesy Nelson is upset after the UK Parliament debated newborn screening for spinal muscular atrophy (SMA), a serious muscle disease affecting her twins. The government plans to introduce screening in October 2026 but only for about 72% of newborns in England, causing concern about unequal access.Key Facts
- Jesy Nelson’s twins have spinal muscular atrophy (SMA), a muscle-wasting disease.
- SMA can be treated if caught early but can cause death within two years without diagnosis.
- Scotland started screening newborns for SMA in March 2024.
- The UK government will introduce SMA screening from October 2026 covering only 72% of newborns in England.
- Some cities like Bristol, Cambridge, Leeds, Liverpool, Oxford, and Portsmouth will not have access to the screening.
- Wales and Northern Ireland have not yet announced plans for SMA screening.
- Limited testing facilities and equipment are delaying full rollout of the screening.
- MPs raised concerns about fairness and urged faster access to the screening across the UK.
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