I Was in a Coma for Three Weeks—When I Woke Up, I Needed My Legs Amputated
Summary
A 23-year-old woman diagnosed with a rare genetic heart disease received a heart transplant in November 2025. After surgery, she developed severe complications including sepsis and organ failure, leading to a three-week coma and the amputation of both legs below the knees and fingers due to tissue death.Key Facts
- The woman was diagnosed with arrhythmogenic right ventricular cardiomyopathy (ARVC), a genetic heart condition causing heart muscle to be replaced by fat and scar tissue.
- She was treated with beta blockers, an implantable cardioverter defibrillator, ablations, and medications but her heart worsened over 10 years.
- She was placed on the heart transplant list and received a donor heart on November 5, 2025.
- After surgery, she developed sepsis (a serious infection) and organ failure, requiring a coma and life support.
- A machine called ECMO kept her alive, but restricted blood flow to her feet and fingers, causing necrosis (tissue death).
- As a result, she had to have below-knee amputations on both legs and partial amputations on her left hand.
- She spent 121 days in the hospital and is recovering from physical and emotional challenges following these events.
- She expresses gratitude for the life-saving transplant despite the severe complications.
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