Doctors failed to spot my hidden condition for so long I was left permanently disabled
Summary
Daneka Etchells suffered from severe endometriosis, a painful condition affecting many women, but doctors missed her diagnosis for 17 years. This delay caused permanent physical disability and ongoing pain, despite surgery to remove the disease. She now performs in a new stage play that highlights issues of medical neglect and disability.Key Facts
- Daneka Etchells first noticed heavy, painful periods at age 12.
- Doctors initially dismissed her symptoms and prescribed birth control pills, which did not help.
- Her diagnosis of endometriosis took 17 years, much longer than the average nine-year wait.
- The untreated disease caused nerve damage and permanent mobility problems.
- She needed excision surgery to remove endometriosis lesions.
- Etchells uses a mobility aid and experiences constant pain.
- She raised money privately for treatment due to long NHS wait times.
- She is now acting in a new disabled-led stage adaptation of The Secret Garden that addresses medical dismissal and disability.
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