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Many Older Americans May Have Dementia Diagnoses Without Knowing

Many Older Americans May Have Dementia Diagnoses Without Knowing

Summary

A new study from Yale University found that many older Americans do not report or know they have been diagnosed with dementia. The study shows that 67% of people in the study underreported their dementia diagnosis, much higher than the underreporting rates for other common diseases.

Key Facts

  • The study was published on August 26 in JAMA Network Open.
  • 67% of older Americans in the study underreported having dementia.
  • Underreporting rates for other diseases were lower: 23% for hypertension, 17% for arthritis, 39% for diabetes, and 46% for depression.
  • Dementia is often not clearly communicated to patients or their families by healthcare providers.
  • Patients who were socially vulnerable, such as those living alone or with lower education, were more likely to underreport dementia.
  • People enrolled in Medicare Advantage or seeing dementia specialists underreported less, suggesting good communication helps.
  • Underreporting was not due to memory problems since those with dementia reported other conditions accurately.
  • Experts say clear communication and support after diagnosis are necessary to improve care and safety.
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