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I have a condition people are too embarrassed to talk about

I have a condition people are too embarrassed to talk about

Summary

Monica Thomas suffered from painful genital symptoms for years before being diagnosed with lichen sclerosus, a condition that causes itching, soreness, and skin changes in the genital area. The condition is often misunderstood, underdiagnosed, and carries social stigma, causing many people to delay seeking help.

Key Facts

  • Monica had symptoms like itching, soreness, sores, and blisters for years before diagnosis.
  • Lichen sclerosus affects the genitals, causing white patches, itching, pain, and skin tears.
  • It is more common in women over 50 but can affect all ages, including children.
  • The cause is unknown but may involve the immune system attacking the skin.
  • The condition is not contagious or caused by infection or poor hygiene.
  • Diagnosis is often delayed, and many people may never be properly diagnosed.
  • There is a social stigma around discussing genital health issues, which adds to delays in diagnosis and treatment.
  • Treatment is usually managed with steroid creams, but follow-up care can be lacking.
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