Couple Welcomes Third Baby—Weeks Later, Dad Gets Devastating Diagnosis
Summary
A couple welcomed their third child, but soon after, the father, Jacobey Severns, was diagnosed with a rare and aggressive cancer that was initially misdiagnosed. After several surgeries and treatments that failed to relieve his worsening pain, doctors at Stanford gave a new diagnosis of malignant melanotic nerve sheath tumor, a rare cancer that grows in nerve roots and is hard to treat.Key Facts
- Jacobey Severns had back pain starting in October 2025, which worsened after the birth of his third child in February.
- Doctors initially thought his pain was from a physical strain and delayed serious testing.
- Imaging showed lesions on his spine and pelvis; a biopsy was needed for diagnosis.
- He was first diagnosed with Stage 4 metastatic melanoma and had multiple surgeries and immunotherapy.
- His condition and pain worsened, leading to loss of mobility and significant weight loss.
- After relocating to Stanford for further care, doctors re-examined his biopsy and found the initial diagnosis was wrong.
- He was diagnosed with malignant melanotic nerve sheath tumor, a rare and very aggressive nerve cancer.
- This rare tumor is difficult to diagnose because it looks like melanoma and pigment-producing tumors and affects people between 10 and 40 years old.
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