My 5-Year-Old Son Felt Unwell on Vacation, Days Later He Was Gone
Summary
Five-year-old Justin developed severe stomach pain and vomiting while visiting family in Portland, Oregon, in July. After his condition rapidly worsened and doctors could not identify the cause through several tests, an ICU doctor found information about idiopathic systemic capillary leak syndrome, also called Clarkson’s disease; the provided article excerpt does not say what happened next.Key Facts
- Justin complained of stomach pain on the night of July 2 and vomited.
- His mother took him to an emergency room on July 3 after he became lethargic.
- Doctors performed blood tests and imaging, including ultrasounds, an MRI and a CT scan, but initially found no clear diagnosis.
- Justin’s condition worsened, and he was transferred to the ICU on July 4.
- His father flew from Colorado to Oregon after learning Justin was in intensive care.
- Justin was placed on life support and dialysis because his heart and kidneys were failing.
- An ICU doctor identified idiopathic systemic capillary leak syndrome, also known as Clarkson’s disease, as a possible explanation.
- The article describes the syndrome as causing plasma to leak from blood vessels into muscles, tissues and organs.
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