Disabled couple 'frightened' by care delays
Summary
A couple in Nottingham with muscular dystrophy is dealing with delays in their care services, including long waits for essential equipment like wheelchairs and shower chairs. They say the care they receive has worsened since the pandemic, leading to anxiety and a feeling of reduced support. The local care board promises to review their situation, while a charity is pushing for better overall care for people with similar conditions in the UK.Key Facts
- Charlotte and Tom Hardwick have different forms of muscular dystrophy, a muscle-wasting condition.
- The couple relies on constant care and has faced delays in equipment repairs and replacements.
- They waited three months for wheelchair parts and two years for a shower chair.
- The NHS Nottingham and Nottinghamshire Integrated Care Board is responsible for their care.
- The Hardwicks feel the quality of care has declined since the COVID-19 pandemic.
- They now have the option to employ their own carers but find it challenging to manage.
- Muscular Dystrophy UK aims to improve care for people with muscle-wasting conditions in the UK.
- The local care board has expressed willingness to work with the couple to address their needs.
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