Summary
A mother, Elleigh Beck, is searching for answers after her infant daughter died three days after birth due to a rare genetic defect that doctors initially overlooked. Elleigh is now advocating for a law to ensure hospitals check newborns' oxygen levels before discharge, which might have detected her daughter's condition. Her story has gained widespread attention online, prompting discussions about medical checks for newborns.
Key Facts
- Elleigh Beck's daughter, Penelope Claire, died at three days old from a rare genetic defect.
- Doctors initially told Elleigh and her partner that their baby was healthy despite their concerns.
- Months of testing revealed Nellie had an incurable genetic mutation, which was fatal in days.
- Elleigh could not pursue a malpractice lawsuit since doctors did not technically do anything wrong.
- Elleigh and her partner created a petition for "Nellie’s Law," asking hospitals to test newborns' oxygen levels before discharge.
- Elleigh shared her story and a video online, and received over 2.5 million views and widespread support.
- She advises parents to ensure their newborns receive oxygen level tests before leaving the hospital.
