Summary
A 14-year-old boy named Kyle Sieniawski from Wales died from motor neurone disease (MND), making him the youngest known victim in the UK. The disease often affects older adults, but Kyle's case highlights that it can occur at any age. Former rugby player Kevin Sinfield is running to raise awareness and funds for MND research.
Key Facts
- Kyle Sieniawski, aged 14, passed away from motor neurone disease.
- He is believed to be the youngest person in the UK to die from MND.
- MND is a rare disease that usually affects people over 50.
- Kyle's condition worsened quickly; he lost mobility and required hospital care.
- His family stresses the need for more awareness and funding for a cure.
- Former rugby star Kevin Sinfield is running seven ultramarathons to raise money and awareness for MND.
- Sinfield aims to raise £777,777 in honor of a friend who also had MND.
