Jesy Nelson told her twin babies may 'never walk'
Summary
Jesy Nelson, a former member of the band Little Mix, announced that her twin daughters have been diagnosed with Spinal Muscular Atrophy (SMA) and may never walk. This rare genetic condition affects muscle movement and can be life-threatening if not treated early. Nelson is using this experience to raise awareness and encourage fast diagnosis for other children.Key Facts
- Jesy Nelson revealed her twin daughters have Spinal Muscular Atrophy (SMA).
- SMA is a severe condition affecting muscles, including those for movement, breathing, and swallowing.
- If untreated, SMA Type 1 can lead to death by age two.
- Nelson's daughters were assessed at Great Ormond Street Hospital in London.
- Treatment has started for the twins, potentially extending their life expectancy.
- Nelson posted a video to raise awareness and promote early diagnosis for others.
- SMA is currently only screened in siblings of affected individuals in the UK.
- A gene therapy drug, Zolgensma, approved in 2021, can treat SMA if used early.
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