Jesy Nelson campaigns for muscle disease test for babies
Summary
Singer Jesy Nelson is campaigning for all newborns to be tested for Spinal Muscular Atrophy (SMA) at birth. Her twin daughters have been diagnosed with SMA, prompting her to start a petition to include it in the routine NHS newborn screening. She has received significant public support and is working to raise awareness about the disease.Key Facts
- Jesy Nelson's twin daughters were diagnosed with Spinal Muscular Atrophy (SMA).
- She is campaigning for SMA to be included in the routine NHS newborn blood test.
- Nelson started a petition to add SMA to the NHS's newborn screening.
- SMA affects muscles and can lead to severe disabilities.
- Nelson's daughters have received treatment, but may not walk or have strong neck muscles.
- A drug called Zolgensma can treat SMA, but it must be given early to be effective.
- Health Secretary Wes Streeting acknowledges the need for faster diagnoses and better genomic medicine use.
- Scotland plans to start routine SMA screening for babies in the spring.
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