Woman’s Pain Started in Childhood—27 Years Later, She Finally Learned Truth
Summary
Leah Mattson, a woman from the UK, experienced pain and health issues from childhood but was not diagnosed until she was 27 years old. She finally learned she has hypermobile Ehlers-Danlos syndrome (hEDS), a genetic disorder affecting connective tissue, after advocating strongly for herself.Key Facts
- Leah Mattson suffered pain and symptoms from a young age but remained undiagnosed for 27 years.
- She experienced bowel problems, hemorrhoids, heavy painful periods, sore legs, and joint pain.
- At age 27, she was diagnosed with hypermobile Ehlers-Danlos syndrome (hEDS).
- hEDS is a genetic condition that causes flexible joints, stretchy fragile skin, and muscle or joint pain.
- The exact gene causing hEDS is not fully known, and diagnosis is often based on symptoms rather than genetic tests.
- Leah had to research and push doctors to get referred to a specialist and receive a diagnosis.
- Raising awareness of EDS is important to help earlier diagnosis and proper treatment.
- hEDS often appears with other conditions, like postural orthostatic tachycardia syndrome (PoTS), which Leah also had difficulty getting treated for before diagnosis.
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